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Patient Support Groups:


National Ankylosing Spondylitis Society (NASS) - provides information and advice to patients: patient education is one of the keys to the best possible management of AS and this will in turn bring about the best outcome for the individual concerned. www.nass.co.uk/public/about_nass.htm


Arthritis Care - exists to support people with arthritis. We are the UK's largest organisation working with and for all people who have arthritis. We are a user led organisation, which means people with arthritis are at the heart of our work – they form our membership, are involved in all of our activities and direct what we do.www.arthritiscare.org.uk/Home


Arthritis Research UK - raises funds to promote medical research into the cause, treatment and cure of arthritic conditions; to educate medical students, doctors and allied healthcare professionals about arthritis; and provide information to the general public. www.arc.org.uk/aboutarc/default.asp


BackCare - is a national charity that aims to reduce the impact of back pain on society by providing information, support, promoting good practice and funding research. BackCare acts as a hub between patients, (healthcare) professionals, employers, policy makers, researchers and all others with an interest in back pain. www.backcare.org.uk/


The Behçet's Syndrome Society - is the official UK patient support group for people with Behçet's disease. The terms Behçet's Syndrome and Behçet's Disease are used interchangeably on this site, but refer to the same condition. www.behcets.org.uk/


The Birmingham Arthritis Resource Centre (BARC) aim is to enable people with arthritis to have and improved quality of life and greater long-term independence through education about their diseases. The information is provided in a variety of forms and is aimed at the multicultural society that makes up Birmingham, particularly for those who infrequently obtain conventional medical help, through partnership with local communities and the research environment of Birmingham University. www.barc.org.uk/


Fibromyalgia Association UK is a registered charity administered by unpaid volunteers. The majority of volunteers are also fibromyalgia sufferers who work extremely hard, despite their condition, in order to forward the cause of fibromyalgia. FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline. www.fibromyalgia-associationuk.org/content/view/28/44/


The UK Gout Society - provide basic information about this metabolic disorder for people who suffer from gout, provide information about the causes and treatment of gout and are committed to raising public awareness, providing education and health promotion to help prevent gout. www.ukgoutsociety.org/about.htm


The Hypermobility Syndrome Association - HMSA aims to provide support and information to those affected by the Syndrome and to promote knowledge and understanding within the medical community and the public at large. www.hypermobility.org/


LUPUS UK is the only national registered charity supporting people with systemic lupus and discoid lupus and assisting those approaching diagnosis. We presently have over 7,500 Members and 30 Regional Groups who arrange medical talks, publish local newsletters, set up local occasions and organise fundraising events. LUPUS UK also produces an informative national magazine with lupus articles, letters, reports, and photographs, and operates a strong grant programme for research purposes and welfare. www.lupusuk.org.uk/index.asp


The Myositis Support Group is a UK charity providing advice and support to individuals and their families affected by Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis. They also raise funds and promote medical research to improve the diagnosis, treatment, management and understanding of these rare illnesses. www.myositis.org.uk/


The Paget's Association - is the one organisation that focuses solely on this condition. It acts as a resource for those with Paget's disease of bone, the public and health professionals, offering high quality information and support when necessary. www.paget.org.uk/


British Pain Society - site related to all areas of pain. www.britishpainsociety.org/


Pain Concern – Provide Information for pain sufferers. www.painconcern.org.uk/


The National Osteoporosis Society - is the only UK wide charity dedicated to improving the diagnosis, prevention and treatment of osteoporosis. www.nos.org.uk/NetCommunity/Page.aspx?pid=183&srcid=183


The Psoriasis Association - is the leading national membership organisation for people affected by psoriasis - patients, families, carers and health professionals. www.psoriasis-association.org.uk/membership.html


The Psoriatic Arthropathy Alliance (PAPAA) – is a joint venture between the Psoriatic Arthropathy Alliance and the Psoriasis Support Trust with the aim of merging the original charities into a single entity, to establish the principal resource of information and help for people with psoriasis and psoriatic arthritis in the UK. www.paalliance.org/


National Rheumatoid Arthritis Society (NRAS) www.rheumatoid.org.uk provides support and information for people with Rheumatoid Arthritis and Juvenile Idiopathic Arthritis, their families, friends and carers, and health professionals with an interest in Rheumatoid Arthritis.


The Scleroderma Society - aims to help and support people with scleroderma, increase awareness of scleroderma and fund scientific and medical research. www.sclerodermasociety.co.uk/newsite/index.php


Sjögren's Syndrome Association (BSSA) - was founded in 1986, as a registered charity, to raise awareness of the disease and support research into its cause and treatment. A self-help organisation with more than 2000 members, the BSSA is dedicated to providing mutual support and information to individuals affected by this disabling disease. We have regional support groups throughout the UK whose members include sufferers and supporters who work together in helping one another cope with the day to day challenges of this debilitating and distressing condition. The BSSA also has a helpline, we distribute a variety of literature including an informative quarterly newsletter and we award an annual research grant. There is currently no cure for Sjögren's Syndrome and the cause is still unknown. www.bssa.uk.net/aboutthebssa.html


The Stuart Strange Vasculitis Trust - provides support and a Contact List for members (family and friends as well as patients), and a newsletter which is published at least twice a year. The website provides information on different types of vasculitis. www.vasculitis-uk.org/.

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